About Us
Connecting Families.
Raising Awareness.
Spreading Hope.
22q of the Carolinas is a 501(c)(3) nonprofit organization dedicated to connecting and supporting families affected by 22q11.2 Deletion and Duplication Syndromes.
We provide education, encouragement, and opportunities for families to meet, share experiences, and find strength together.
Join us as we raise awareness, build community, and bring hope to families across the Carolinas.
What Is 22q?
22q11.2 Deletion and Duplication Syndromes, commonly called 22q, are genetic conditions caused by a small missing or extra piece of the 22nd chromosome.
This tiny difference can impact nearly every system in the body and may cause a wide range of health and developmental challenges.
Because symptoms vary from person to person, 22q often goes undiagnosed for years. Yet, it is believed to be the second most common genetic disorder after Down syndrome.
Our Mission
At 22q of the Carolinas, our mission is to raise awareness, promote early diagnosis, and strengthen connections among families living with 22q throughout North and South Carolina.
We believe that no one should walk this journey alone!
Did You Know?
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22q can cause over 180 possible symptoms.
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Early diagnosis leads to better outcomes.
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Awareness is key! Most people have never heard of 22q.
Donate
Every donation helps 22q of the Carolinas continue its mission to raise awareness, support families, and build community.
Your contributions helps us:
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Host our annual 22q at the Zoo awareness event.
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Provide resources for newly diagnosed families.
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Offer connection opportunities and family gatherings.
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Work toward future retreats and educational programs.
22q of the Carolinas is a registered 501(c)(3) nonprofit. All donations are tax-deductible.
Give online using Zelle, Venmo, or PayPal.
Request a care card or get well card
Please send the name and address for the card to this email or fill out our contact form with the information.